Welcome
This blog is about a new walk with my husband Rick & I since he was diagnosed with ALS (Amyotrophic Lateral Sclerosis) or Lou Gehrig's Disease or MND (Motor Neuron Disease) on February 1, 2008.
This blog was started as a way to keep our family and friends and anyone else interested in our battle with ALS updated.
So as you read this blog please keep us in your hearts and prayers.
The blog starts from the most current to the oldest entry. Rick has started to blog now also as of April 1,2008 so this site has become officially "our blog".
My dearest husband Rick passed away on August 13, 2010,
2 1/2 yrs after diagnosis. Now I have to learn how to walk in the courage, strength and bravery that he did in fighting this disease. He promised me he would be waiting for me in eternity on a park bench. Together Forever!
This blog was started as a way to keep our family and friends and anyone else interested in our battle with ALS updated.
So as you read this blog please keep us in your hearts and prayers.
The blog starts from the most current to the oldest entry. Rick has started to blog now also as of April 1,2008 so this site has become officially "our blog".
My dearest husband Rick passed away on August 13, 2010,
2 1/2 yrs after diagnosis. Now I have to learn how to walk in the courage, strength and bravery that he did in fighting this disease. He promised me he would be waiting for me in eternity on a park bench. Together Forever!
Friday, February 26, 2010
Rick and Joan here..."A few more tips & tricks"
1. Aspirator/Suction Machine: A new piece of equipment! On hand for the time where Rick will need to clear the flem out of his throat. We have noticed his voice is getting harder and harder to clear.
2. Digital Overhead Clock: Rick can lie in his bed without trying to turn his head to check on the time. It really enjoys it at night when he wakes up and looks up at the ceiling and there it is the time in big red letters!
3. Velcro Leg strap for his legs: I have used the wide cloth strap with velcro ends that came from a microfibre blanket from Walmart to keep his upper legs together. Otherwise, they will flop over to the sides.
4. Voice Activated Walkie Talkie's: We have found this so useful when I leave the room. Rick's hands are very weak and will so no longer be able to push a control button. We just set the Walkie Talkies to voice activation and all he as to do is talk, moan make noise and there I am!!!