Welcome

This blog is about a new walk with my husband Rick & I since he was diagnosed with ALS (Amyotrophic Lateral Sclerosis) or Lou Gehrig's Disease or MND (Motor Neuron Disease) on February 1, 2008.

This blog was started as a way to keep our family and friends and anyone else interested in our battle with ALS updated.
So as you read this blog please keep us in your hearts and prayers.

The blog starts from the most current to the oldest entry. Rick has started to blog now also as of April 1,2008 so this site has become officially "our blog".

My dearest husband Rick passed away on August 13, 2010,
2 1/2 yrs after diagnosis. Now I have to learn how to walk in the courage, strength and bravery that he did in fighting this disease. He promised me he would be waiting for me in eternity on a park bench. Together Forever!

Saturday, February 6, 2010

Joan here..."A shopping we will go!"


I headed out yesterday afternoon to pick up supplies with my oldest granddaughter. We had a blast! Giggled our way through lunch and tried some new foods and shopped till we dropped! Mostly supplies for Rick. I might add she picked out a few sweet things for grandma along the way. I was so amazed how a 12 year old would even be interested in doing that!

While we were gone our little Katie (7) made it her personal quest to come over and check on grandpa every so many minutes. She did her little visit even though her parents were in the house. She would not let them go over and check on grandpa... it was hers to do! She is also the little one that fills up our wood holder in the suite. She carries the wood from the wood pile and works with me in stacking it in doors. It usually works out to be one of the colder days when she does it. That doesn't seem to stop her enthusiasm and never stops till the job is completely done!

When we got home with all kinds of special foods for supper Tia asked if she could once again feed grandpa. She does such an excellent job of it. We are so fortunate to have such great grgirls living next door. They have such tender and thoughtful hearts!

We are just sitting around and waiting for Spring to arrive! There is an incredible rumour going around that Spring WILL be coming!

We are still in the process of arranging for all the necessary planets to line up to be able to bring in Rick's chair and have the "sip and puff" equipment fitted in a couple of weeks.

Rick's voice is becoming more scratchy and hoarse and takes longer to be normal ...I don't know how to explain it.... We are hoping it is not phlegm building up in there as he can't really cough or sneeze properly. We are in the process of looking for a suction machine and a cough assist machine to try and stay ahead of this all.

I have located a product that is called "Smart Vest" and it is used to help maintain respiratory health. It is an Airway clearance therapy using High Frequency Chest Wall Oscillation (HFCWO) and promotes excess mucus clearance and improve bronchial drainage. If any of you have some ideas on this please do let us know. We are so very uneducated in all of what is out there in "health" land to make this disease more manageable!