Welcome

This blog is about a new walk with my husband Rick & I since he was diagnosed with ALS (Amyotrophic Lateral Sclerosis) or Lou Gehrig's Disease or MND (Motor Neuron Disease) on February 1, 2008.

This blog was started as a way to keep our family and friends and anyone else interested in our battle with ALS updated.
So as you read this blog please keep us in your hearts and prayers.

The blog starts from the most current to the oldest entry. Rick has started to blog now also as of April 1,2008 so this site has become officially "our blog".

My dearest husband Rick passed away on August 13, 2010,
2 1/2 yrs after diagnosis. Now I have to learn how to walk in the courage, strength and bravery that he did in fighting this disease. He promised me he would be waiting for me in eternity on a park bench. Together Forever!

Saturday, November 21, 2009

Joan here..."A few comfort things for Rick"










He is fast asleep right now! Which is a very good thing as he has uncomfortable nights.

Rick's mom found the foam pillow when we went shopping for some really soft little micro blankets to prop up his legs.

We also discovered placing our camping cot beside the hospital bed once it was lowered to as low as it could go gave us a chance to hold hands and lie beside each other!!! It was driving us crazy that we couldn't sleep by each other.

The foam pillow works as an awesome support that is both firm and soft for his now turning in toes and feet. It has brought him much relief and I don't have to get up as much at night to straighten them up for him. We both win! The little micro blankets $8.00 with extra short and extra soft surface make it so very comfortable to prop up legs, arms and even place in the wheelchair beside his legs so the legs won't rub on any metal.