Welcome

This blog is about a new walk with my husband Rick & I since he was diagnosed with ALS (Amyotrophic Lateral Sclerosis) or Lou Gehrig's Disease or MND (Motor Neuron Disease) on February 1, 2008.

This blog was started as a way to keep our family and friends and anyone else interested in our battle with ALS updated.
So as you read this blog please keep us in your hearts and prayers.

The blog starts from the most current to the oldest entry. Rick has started to blog now also as of April 1,2008 so this site has become officially "our blog".

My dearest husband Rick passed away on August 13, 2010,
2 1/2 yrs after diagnosis. Now I have to learn how to walk in the courage, strength and bravery that he did in fighting this disease. He promised me he would be waiting for me in eternity on a park bench. Together Forever!

Sunday, January 15, 2012

Joan here..."Thank you my friends"

Thank you my friends from"Canada, United States, Germany, United Kingdom, New Zealand, Russia, Japan, France, Ukraine, Australia." It is so nice to hear from you all! I wish you all the best in this New Year 2012!!!!

It is so amazing how the internet can link us all together! If you have landed on this site because of someone you love that has ALS please let me know. My heart goes out to you!!!!

It is -2 C and snowing here right now.

So if you are living in a warm sunny climate take in all the rays you can for the rest of us!

Saturday, January 14, 2012

Joan here..."Jan 16 th Check out CJNU 107.9 FM Winnipeg"

This month the ALS Society of MB is the major sponsor on the CJNU 107.9 FM Winnipeg Radio Station. They play 40's, 50's and 60's music. CJNU 107.9 FM Winnipeg is a non profit radio station. Nick Drobot aka Elvis sang a couple of songs Friday at 1:00 pm the 13th of January.

It was amazing that it was on the 13th. It is 17 months to the day that Rick has passed. Here I was sitting by the computer with Rick's dad and mom and listening to Nick sing and speak. I knew Rick would be so proud and grateful for what Nick was doing in his memory!

If you get a chance listen to the radio on CJNU 107.9 FM Radio Winnipeg Monday 9:00am. I will be speaking for a few minutes in regards to the ALS Society of MB.

If you live outside of Winnipeg or anywhere else in the world you can get it on computer by clicking on the link then clicking on a media format that works on your computer. http://www.cjnu.ca/feeds.shtml If you live in MB and have MTS TV it is on channel 725.

I pretty much have stayed away from being involved as my emotions are still very raw. I know in time I will totally immerse myself to help promote awareness and support when it comes to ALS. I just needed some time to work through my own pain. I have heard too many horror stories about people jumping right into things when a loved one passes. They bury themselves in doing and keeping busy and then all of a sudden down the road it all crashes down on them.

I have been told and I keep telling myself it is okay to take time off to grieve for however long I need. I remember years ago a woman I knew lost her husband in an tragic car accident in her 50's. When she was in her 70's it all came to a head. She became so depressed. It wasn't until she allowed herself to grieve that she came out of that depression. She also started to talk and talk about the life they had had together. I never forgot her and what had happened to her.

Rick and I hosted so many parties and gatherings over the years. We would go all out with the food and decorating and on and on. Since he has passed I have just stayed away from it all. There is no joy in any of that for me right now. So anything that I do these days I look at it as a step forward no matter how small the step.

Wednesday, January 11, 2012

Joan here..."Happy Birthday Ricki"

In earth years it would have been your 59th birthday today Ricki! It is so hard to wrap my head around the fact that another birthday is here and that you have been gone for 17 mos on the 13th which is this Friday. That means you are spending your 2nd Birthday as a spirit being! Free from pain or sickness!

I was imagining this morning how Rick you are probably being surrounded by all our loved ones who had passed on already. I pictured my dad talking to you about his latest invention ideas while you sat there encouraging him. I imagined you sitting in a boat fishing all the while you filling in your grandmas and grandpas on the latest news and catching up on their lives since they passed. I tried to visualize you getting to see and finally hear my grandpa's belly laughs and creative humour. I am sure his belly laughs echo through the heavens. I even imagined you having a cup of tea with grandma, and then you reminiscing with all the aunts, uncles, cousins, friends and neighbours and even getting to know the two brothers and sister that I never had a chance to get to know.

I imagined the host of all these departed loved ones gathering from all corners of the universe in the spiritual realm to celebrate not your earthly birthday but you just being with them. All the while all of you knowing how sad we would be feeling here on earth today because we all miss you so much!

As I daydreamed...my imagination grew and grew....I imagined how God would be giving you the biggest party ever! Choirs and choirs of angels singing, decorating the pearl laden room for you with real stars, everything full of the richest brightest colours that none of us have never seen before and the party room stretching out as far as one could see. Hey, maybe even Elvis would give you a special song!

Then I imagined you Rick looking around at the magnificent and awesomeness of God and His love for you and at that moment how you would be falling down to the ground and giving glory to God for the "present" that HE had given you and you had received while you lived on earth. And it is only now that that this present was being manifested in an ever eternal revealing way. .. because of the gift of eternal life through Jesus you were now in front of the King of Kings and Lord of Lords and that you could live now forever in health, happiness, wholeness and love for all eternity!

Rick you are so lucky as you now know God's plan for you in its entirety! I tried to imagine the joy on your face now in your new home, new surroundings and now experiencing the depth, breath and height of God's love!

I then imagined the moment that I would once again see you face to face my darling!

When I feel sad and missing you Ricki so much especially on these earthly remembrances of our special days....How can I not rejoice and be thankful to God for what HE has all done for especially you my darling Ricki!

You are so loved and so missed but I so rejoice in knowing who you are now all hanging out with!

Here's from earth to you darling Ricki..."Happy 59th Birthday!" I Love you!