Welcome

This blog is about a new walk with my husband Rick & I since he was diagnosed with ALS (Amyotrophic Lateral Sclerosis) or Lou Gehrig's Disease or MND (Motor Neuron Disease) on February 1, 2008.

This blog was started as a way to keep our family and friends and anyone else interested in our battle with ALS updated.
So as you read this blog please keep us in your hearts and prayers.

The blog starts from the most current to the oldest entry. Rick has started to blog now also as of April 1,2008 so this site has become officially "our blog".

My dearest husband Rick passed away on August 13, 2010,
2 1/2 yrs after diagnosis. Now I have to learn how to walk in the courage, strength and bravery that he did in fighting this disease. He promised me he would be waiting for me in eternity on a park bench. Together Forever!

Saturday, March 28, 2009

Joan here...THE bed is here!


Jake and Val set up Rick's bed for us. The equipment came in some pretty large cardboard boxes and were extremely heavy.
The bed came at a very good time even though we don't like the idea of it! Anything that helps making Rick's mobility and comfort better is becoming a real God send to us!

We did our usual kick, kick and kick thing and then proceeded to be very thankful for all the people who deligently worked to get the bed out to us quickly and to Jake and Val for the setting up of the equipment.

Rick needs help to pull himself up in the bed so the trapeze bar was a really big help to him.
It was a very emotionally trying day as we all went about to set up everything. The little girls were so encouraging despite how we were feeling inside. Tia and Katie hopped up and wanted to sit by grandpa in his new bed. Tia said she really liked the bed better than the chair because now she could sit close to grandpa again! Katie decided that the hospital tray would make it much easier to play cards and chess now with grandpa.

Rick and I did manage to snuggle in the bed last night for the most part! We are such snugglers that we were determined not to let equipment seperate us.