Welcome

This blog is about a new walk with my husband Rick & I since he was diagnosed with ALS (Amyotrophic Lateral Sclerosis) or Lou Gehrig's Disease or MND (Motor Neuron Disease) on February 1, 2008.

This blog was started as a way to keep our family and friends and anyone else interested in our battle with ALS updated.
So as you read this blog please keep us in your hearts and prayers.

The blog starts from the most current to the oldest entry. Rick has started to blog now also as of April 1,2008 so this site has become officially "our blog".

My dearest husband Rick passed away on August 13, 2010,
2 1/2 yrs after diagnosis. Now I have to learn how to walk in the courage, strength and bravery that he did in fighting this disease. He promised me he would be waiting for me in eternity on a park bench. Together Forever!

Tuesday, December 29, 2009

Joan here..." A very quiet Christmas"


We have had a very quiet and reflective Christmas Day. Lots of falling snow and very picturesque. We were treated once again to some angel sounding carollers on Christmas eve!

Afterwards we sat near the toasty warm wood burning fireplace, with all the Christmas lights beaming out the window, and we began to talk about all our previous Christmases. How we always tried to go all out for this time of the year! We have always enjoyed spending that time with family and friends.

We were remembering how he would try and play Santa for the gkids. One of our last memories of him being able to do that was two Christmases ago. This picture shows him standing outside our house coming in with gifts for the gkids. (Santa is a bit on the skinny side (Rick says). What you don't see in the pic are all the little smiling cheering faces on the other side of the window as they watched Santa moving up and down the street heading to our house! There was joy in remembering those special moments but sadness in thinking we will never have them again. Each Christmas that we have together has become even more precious than ever!

On Christmas day this year we were invited to our neighbors (Jake and Val) for a wonderfully cooked brunch. We then retired back to our suite for a much needed nap after all that food. Then later on that evening our neighbors (Jake and Val) brought us a complete Christmas dinner with all the trimmings! It was so wonderful of them to share this time with us. Rick was so tired from the day that I ended up feeding him his much desired dark turkey meat and dressing from his bedside.