Welcome

This blog is about a new walk with my husband Rick & I since he was diagnosed with ALS (Amyotrophic Lateral Sclerosis) or Lou Gehrig's Disease or MND (Motor Neuron Disease) on February 1, 2008.

This blog was started as a way to keep our family and friends and anyone else interested in our battle with ALS updated.
So as you read this blog please keep us in your hearts and prayers.

The blog starts from the most current to the oldest entry. Rick has started to blog now also as of April 1,2008 so this site has become officially "our blog".

My dearest husband Rick passed away on August 13, 2010,
2 1/2 yrs after diagnosis. Now I have to learn how to walk in the courage, strength and bravery that he did in fighting this disease. He promised me he would be waiting for me in eternity on a park bench. Together Forever!

Saturday, April 3, 2010

Rick and Joan here..."Happy Easter"


We are enjoying our quiet Easter weekend. Good friends Brian and Jan will be here with us today!

Being Easter time...I was thinking this morning about the song "because HE lives...we live and we can face tomorrow". Our faith in Jesus allows us to live each day to the fullest that we can.

We have been told by so many that we are so strong! Both Rick and I have said before and now will say it again...it is NOT our strength that has carried us through this far on this journey but it is the daily strength we receive from the hand of God! Each day we receive fresh manna (food that came down from heaven daily to sustain the Israelites as they wandered through the desert) from heaven to sustain us and keep us from totally being overwhelmed or freaking out!

Every day we face new challenges in Rick's care. We believe and give total credit to all the people who have been praying for us. We have experienced wisdom for the moment, the care of wonderful and committed people, experienced doors opening for getting Rick's much needed equipment as we needed it, genuine words of encouragement from our newly found friends from the blog to both of us, meals, wheelchair delivered and picked up from HSC (which is a feat in itself), computer help, cards, books, phone calls, family and friends who have shared their support and love for both of us.

It is so amazing when you are emotionally and physically down how even a few kind words can help to restore and lift up your spirits for the day!

We have had strangers send over flowers, rec'd emails from all over the world, and our own children who have opened their hearts and home to us. Rick has even had strangers stop him on the street to offer words of encouragement. We take all those special moments and know they truly come from the hand of God!
A person really never knows how they would cope with a difficult challenge until they are the one walking through it. In our case dropped into it! The words...His mercies are new every morning...I will fear no evil, for YOU are with me...all take on a life of their own! Yes, Jesus is alive and is living through His words and through the lives of others!
Have a Happy Easter!