Welcome

This blog is about a new walk with my husband Rick & I since he was diagnosed with ALS (Amyotrophic Lateral Sclerosis) or Lou Gehrig's Disease or MND (Motor Neuron Disease) on February 1, 2008.

This blog was started as a way to keep our family and friends and anyone else interested in our battle with ALS updated.
So as you read this blog please keep us in your hearts and prayers.

The blog starts from the most current to the oldest entry. Rick has started to blog now also as of April 1,2008 so this site has become officially "our blog".

My dearest husband Rick passed away on August 13, 2010,
2 1/2 yrs after diagnosis. Now I have to learn how to walk in the courage, strength and bravery that he did in fighting this disease. He promised me he would be waiting for me in eternity on a park bench. Together Forever!

Wednesday, May 5, 2010

Rick and Joan here..."Reynolds School Kickoff"

We arrived at the Reynolds School with a bunch of the students looking out the front door and eagerly awaiting in the gym to welcome us!

Once again we will not be posting any pics of the students due to safety issues.





Here is a pic of us with some of the staff. We are so absolutely amazed at how each school has its own personality! What a lovely school Reynolds School is with really attentive students. The staff and students greeted us with such warm welcomes! It was very special for us to be there as this is the area that Louise Lamaga lived and also taught from. The students walk each year in her memory. Louise lost the battle to ALS in 2007. The students are all familiar with the devestation that ALS leaves in peoples lives.

Once again after the dvd presentation we were amazed at the insightful questions that the staff and students asked us. When asking the students if they know of anyone in a wheelchair we have been so amazed at the amount of hands that go up each time. Growing up both Rick and I weren't around people in wheelchairs. These students have such an awareness of handicapped people! The kids loved Rick doing tricks in his chair! Tilting way back till nearly horizontal, and they loved the sip and puff hands free system on his chair. He even complied to the request to show them how fast his chair goes across the gym floor!

Special thanks to little Jasmine for standing watch at the door!!! Thanks Reynold School for opening your school and your hearts to us!!! Your school may be small in size but it is sure big in heart!!!!


Our handi----dandy----van driver Martin....always treats us so awesome!!! He has become a friend to both of us.






When in Hadishville we were told we are not to leave the area until we stop at the infamous spot "Sophie's Restaurant". Well!!!! we did as we were advised ...awesome...awesome...place... home cooked meals...and desserts to die for! You have to try the Heavenly Hadishville dessert!!! It is such a quaint and wonderful place. We were greeted with open arms and wonderful service. We were sent home with a bag of complimentary mini loaves of bread to enjoy. We hear they serve awesome pizza every Friday!!!! They are just a couple of minutes off the No. 1 Hwy on Hwy 11 and well worth the stop. They are open 7 days a week and to boot they are licensed! When at Sophie's do say hi to "Pat" from us and say you heard about them from Rick and Joan. Their website is http://www.sophies4food.com/.