Welcome

This blog is about a new walk with my husband Rick & I since he was diagnosed with ALS (Amyotrophic Lateral Sclerosis) or Lou Gehrig's Disease or MND (Motor Neuron Disease) on February 1, 2008.

This blog was started as a way to keep our family and friends and anyone else interested in our battle with ALS updated.
So as you read this blog please keep us in your hearts and prayers.

The blog starts from the most current to the oldest entry. Rick has started to blog now also as of April 1,2008 so this site has become officially "our blog".

My dearest husband Rick passed away on August 13, 2010,
2 1/2 yrs after diagnosis. Now I have to learn how to walk in the courage, strength and bravery that he did in fighting this disease. He promised me he would be waiting for me in eternity on a park bench. Together Forever!

Saturday, January 23, 2010

Rick and Joan here..."Yeah!!!Another addition to our care team!"


We were so delighted to have our yourngest son spend the night here. He slept on the sofa near his dad and I got to sleep upstairs and not have to worry about Rick's care.

Daniel is officially added to his dad's care team as he can now, do the tube feeding, hoyer lift, operate the bipap, execute the transfer of his father to the wheelchair and commode chair. He aided in the showering, enema administrating, feeding, range of motion exercises (which I might add...he is a natural at) dressing, urnial administration and personal care processes ie shaving, brushing teeth and etc.

It is so hard to believe our youngest son is a "man" and no longer our "little" boy!