Welcome

This blog is about a new walk with my husband Rick & I since he was diagnosed with ALS (Amyotrophic Lateral Sclerosis) or Lou Gehrig's Disease or MND (Motor Neuron Disease) on February 1, 2008.

This blog was started as a way to keep our family and friends and anyone else interested in our battle with ALS updated.
So as you read this blog please keep us in your hearts and prayers.

The blog starts from the most current to the oldest entry. Rick has started to blog now also as of April 1,2008 so this site has become officially "our blog".

My dearest husband Rick passed away on August 13, 2010,
2 1/2 yrs after diagnosis. Now I have to learn how to walk in the courage, strength and bravery that he did in fighting this disease. He promised me he would be waiting for me in eternity on a park bench. Together Forever!

Friday, May 1, 2009

Rick and Joan..."Whitemouth School Assembly 2009"

On your mark...get set...GO! Rick and Val driving some of the equipment to the Whitemouth School Assembly 2009 with only minutes to spare. I kept flooding "the beast" and it wouldn't start. A story for another day.


Rick says"the best pic missing is Joan running along the side of us in her high heels taking the pics." What a woman!!!

This is us at Whitemouth School Assembly in May 2008. Just a year ago. Rick could still walk with only a cane. Rick was just diagnosed in Feb. a couple of months ago before this assembly.
We think the kids were quite affected by the progression of the illness...we sure have been!

This is us today at the Whitemouth School Assembly for 2009. Rick in a motorized wheelchair full time and sleeping in a hospital bed. We decided to bring a whole lot of equipment that Rick has used and is no longer adequate as well as a couple of pieces that are his life line as of right now! We wanted the kids to see the progression and quantity of equipment that ALS demands. So the school sent over some strong students to pick up a load of equipment and helped us to get it over to the school.
They had a contest where the students tried to guess the value of the different pieces of equipment. They will announce the winners Monday. They are a competitive bunch! :) Winners win a pail of ice cream and ice cream cones for the class!
Our personal thanks to Principal Craig, all the dedicated teachers, and of course the fantastic students who so patiently and respectfully sat through it all! Monday.....Beausejour School here we come!!!! Thanks guys!!!!!