Welcome

This blog is about a new walk with my husband Rick & I since he was diagnosed with ALS (Amyotrophic Lateral Sclerosis) or Lou Gehrig's Disease or MND (Motor Neuron Disease) on February 1, 2008.

This blog was started as a way to keep our family and friends and anyone else interested in our battle with ALS updated.
So as you read this blog please keep us in your hearts and prayers.

The blog starts from the most current to the oldest entry. Rick has started to blog now also as of April 1,2008 so this site has become officially "our blog".

My dearest husband Rick passed away on August 13, 2010,
2 1/2 yrs after diagnosis. Now I have to learn how to walk in the courage, strength and bravery that he did in fighting this disease. He promised me he would be waiting for me in eternity on a park bench. Together Forever!

Friday, April 11, 2008

Joan here...It's Friday

Today is Friday, glad it is the end of the week. Rick and I will have the weekend together. The appraisal on the house came through today which met all our expectations! So that is a relief for all of us. So it is all bitter sweet!!! Happy to sell....so very very very sad to close the chapter on this book in leaving our home! We have built us a little nest for ourselves. We made sure we built a double shower, double sink, huge double tub....because we do everything together! That is us!!! We talk on the phone every minute that we are not together...we talk about the kids, our grandkids, our families, our work, and what we are going to plant in our garden this year, what we are going to cook for supper..and the list goes on and on. In 12 years we have not stopped talking!!! It is like we just don't have enough time together!

My dearest husband and I had another reality check yesterday evening. He went to bq some steaks...hey why not aye??? steak every night if he wants!!! And of course the tank was empty. He refused any help for anything so off he went. Later on, he admitted once the deed was done that he could not even carry one bq tank. He had to drag it from the car on the ground to the bq. I was so devastated. How does one watch their loved one disintegrate in front of their very own eyes and not be in anguish of their soul?

On the lighter side, we have had a wonderful phone call from Lorraine the daughter who lost her mom from ALS. She is organizing the walk in Whitemouth in memory of her mother and who we are privileged in joining in to spread the word and helping to raise the funds to find the cure for it! She has an incredible story of how her mom went through much pain, agony and stress to even be diagnosed. We have come to realize once again that Rick experienced a miracle in how he was directed to the right neurologist at the right time! If it was not for that, Rick too would have been going to the same neurologist as her own mother did. Anyone, who has had a loved one afflicted with this ALS does not want to see anyone else go through this.

Rick and I have been asked to speak to the students of the Whitemouth School about ALS at their ALS kick off in early May. We feel so very honored at being asked but so humbled in what can we really even can say!

As I write this, Rick's only brother, Garth, who took some of his holiday time, is busy out at Whitemouth along with Jake taping and etc. trying to get our new suite ready for us! No one will ever know how much this means to us!

Thank you everyone once again for all your love, kindness, and support. It may not ever be Rick and I that can repay you for all of this but we truly know and believe in our hearts...there will always be someone to help you in your time of need!