Welcome

This blog is about a new walk with my husband Rick & I since he was diagnosed with ALS (Amyotrophic Lateral Sclerosis) or Lou Gehrig's Disease or MND (Motor Neuron Disease) on February 1, 2008.

This blog was started as a way to keep our family and friends and anyone else interested in our battle with ALS updated.
So as you read this blog please keep us in your hearts and prayers.

The blog starts from the most current to the oldest entry. Rick has started to blog now also as of April 1,2008 so this site has become officially "our blog".

My dearest husband Rick passed away on August 13, 2010,
2 1/2 yrs after diagnosis. Now I have to learn how to walk in the courage, strength and bravery that he did in fighting this disease. He promised me he would be waiting for me in eternity on a park bench. Together Forever!

Saturday, October 10, 2009

Joan here..." A driving we will go...A driving we will go"


I had a brain wave to take Rick for a ride on the back roads up here to enjoy the last beautiful look at falltime. Little did I know at the time that exactly 7 days later we would have 6" of snow.
Rick usually rides in the back of the beast bouncing around with little ability to see out the windows. I wanted him and I to experience a bit of normal where we both could sit by each other and that he could actually see out all sides of the truck.
I was determined to get him into our car but that was impossible! Too low!
Jake came along and suggested we try putting Rick in his truck as it is higher off the ground. Rick was so apprehensive about it all as he is so volunerable physically and sure doesn't want to get hurt in anyway. He also worries that Jake would hurt himself when lifting him. Rick forgets that he doesn't weigh very much right now. Rick needs support on both sides of him so he doesn't fall sideways.
Jake picked him up and put him in the passenger side of the truck. We hooked up his seatbelt and away we went. Wow!!!! Such an ordinary thing like jumping in a vehicle and driving away became this incredible wonder for us!!!!
I drove all around the back roads and up to Pinawa and Lac Du Bonnet and had a wonderful time. We chatted and held hands non stop. Usually, when Rick sits in the van it is so noisy that we have to yell to hear one another. We stopped for some take out food. Just having Rick sit in a regular seat was such a treat for the both of us. We didn't want to come back to have Rick be put back into the wheelchair again! We felt normal for the couple of hours as we travelled along!!!