Well it is done...Rick's is officially fitted for a bi-pap machine!
Another piece of equipment for me to master!!! oh yeah!! and clean!!!
Today, was not a good day for me at all. I have come to realize that every time there is a piece of equipment added to our daily routine I first get so angry about it. I know it means helping Rick to have an easier time but for me it just means more work somehow! Another loss of sorts!
I am ready for an ALS break about right now! Sleeping at the ALS hospice is always a challenge for us. It is a great help and service to us ALSers but it is also physiologically challenging for us. It is a face front reminder of what is down the road.
Karen was so awesome today in showing me how the equipment works. I am so truly amazed at the wonderful people that are out there helping us. It is not their fault that I have to do some personal adjusting each time.
As I write this Rick is bi-paping!!! lol...he really had a hard time to let me hook him up to it tonight as he knows how hard it was for me just to even bring another piece of equipment back! Never mind how he looks in it!
I was so encouraged tonight that his bro and parents called to see how it went today...it was sooooo stressful on all fronts!!!!
